Face Value: Living with Neurofibromatosis | Amit Ghose
Update: 2025-08-03
Description
In this powerful and deeply personal episode, Amit Ghose shares his incredible journey of living with neurofibromatosis—a rare genetic condition that causes tumors to grow on nerves. From childhood bullying and painful surgeries to finding love and purpose, Amit opens up about the physical and emotional challenges he's faced and how he turned adversity into advocacy. His story is one of resilience, heartbreak, transformation and hope.
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